Bria and Andrew Huber fell under a cloud of suspicion after their infant daughter Kenley suffered multiple unexplained bone fractures. In the months that followed, Andrew was arrested and indicted on a 2nd degree felony of injury to a child.
We cannot begin to explain how much it means to us to be on the other side of this nightmare. To not only prove Andrew’s innocence, but to also shed light on an under-diagnosed disorder.
When Kenley was first hospitalized, the only thing that allowed us to get out of bed each morning and keep fighting for answers was the belief that we’d eventually get to this point. We were chosen to go through this for a reason and although we don’t know what that reason is, we felt there was a purpose in all of this. We reached out to doctors across the country and traveling to see specialists who could help solve this mystery. At that time, all we were clinging to was the fact that we cherished our daughter and would never hurt her.
When reaching out to doctors, it was important that we were clear with them that this was a criminal investigation as well as a medical one. If the doctors found something medically wrong with Kenley, they may need to testify. Many doctors refused to see us for that reason, which was heartbreaking.
When we finally would get an appointment, which was usually several weeks out, we naively put all of our hope in that doctor’s opinion. We’d drive or fly to that appointment thinking, “This is it; this expert is going to know what’s going on.” Unfortunately, we were wrong. Kenley’s young age and the fact that she had no new fractures led most doctors to believe she had been abused.
After meeting Rana Tyson, that all changed. We finally knew which type of specialists to see and the fact that Bria had so many of the common symptoms of EDS made us confident that was our answer. Bria was diagnosed in April. The day before Kenley’s 1st birthday, the DA agreed there was something medically going on in our family and allowed Andrew to see Kenley under family supervision (no more court appointed supervisor!). Five months after that, Kenley was diagnosed with EDS as well. 15 months after this ordeal first began, the case against Andrew was dismissed.
Ehlers-Danlos Syndrome (EDS) is an inherited connective tissue disorder that’s caused by defective collagen in your genes. Collagen is the “glue” that holds your body together so if it’s not properly synthesized, your skin, muscles and ligaments lack the strength and elasticity they need to perform normally. There are six primary types of EDS. Kenley and Bria were both diagnosed with the Hypermobile version. There has yet to be a gene discovered for this type of EDS, so diagnoses are made clinically. EDS alone has not been directly linked to fractures. However, vitamin D deficiency is a common occurrence in patients with EDS. According to our geneticist that diagnosed Kenley, the combination of in utero vitamin D deficiency and continued vitamin D deficiency during the first few months of life for a child who also has Ehlers Danlos/hypermobility syndrome markedly increases the risk for the child to have fractures. These fractures can occur during the birthing process and normal handling of the infant during the first few months of life.
In many cases, corner fractures like Kenley’s are indicative of abuse. In our case, it was not and that’s the reason we’re urging doctors, CPS and police to include EDS and vitamin D deficiency in their differential diagnosis before possibly ruining a family with abuse allegations. Thankfully, our family is stronger than ever and Kenley is thriving! Thank you to Katie Couric and staff for caring about our story and sharing our passion to spread the word about misdiagnosed child abuse.